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Any one with Neurofibromatosis and got disability insurance, how'd you go about doing it?



My mom want's to know, because she wants to put me onto disability, she talked to some people that said that I should be able to get it, but then she talked to a lawyer, that said it would be impossible. Any help would be great. I'm 23. Thanks

Hey Lindsey Thanx For The Help Trying Like I Said I Have N F 2 So Their Is A Difference But Getting On Disability Should Be The Same......Ive Been Going To The University Of Alabama In Birmingham Alabama Long For UAB But Anyways They Said I Would Have To Have A Good Lawyer Or Good Doctors So If I Was U See One Of The Two Either Go To The Doctor Or If They Cant Help Go To A Family Lawyer I Know Its Alot Of Money But It Will Payoff Trust Me I Said The Same Thing I Just Got Took Off My Job As Of Yesterday So It Hasnt Effected Me Fully Yet Off Track Again Sry If U Can Find One I Would Go To A Lawyer Or Find Some One To Help U And Then Go TO The Social Security Office In Ur Area Its A Long Process But Its Worth It Being Off Work With Nothing U Know I Understand Im Going Through The Same Disease Here....... And I Dont See Why He Wont Help U U Can Get It Cause Im Getting It And In Some Words Mine Is Rarer Than NF1 And Their Is No Cure For NF2 Either So I Hate To Say It But Someone Is Lying To You And I Dont Think Ur Mom Is Babe...But If U Need Any Help At All Trying To Find Insurance Let Me Know. My Number Is 1 256 740 0470 My Name Is Justin And I Will Be Glad To Find U Some Help But Like I Said It Wont Be Cheap
Do you have NF1 or NF2?

NF1, I'd say disability is out of the question.

NF2, I'd say its a possibility.

It depends on your prognosis, and the amount of treatment you've previously received & responded to. (and how well you responded)

Speak with your doctor. Technically, you shouldn't be entitled to disability unless you can't work due to your illness or injury. If you can't work, and its due to your disease, then you have a shot... Otherwise, no. Period. Speak with your doctor. Ask their opinion.

Unless your condition is dibilitating, I'd say no. I have relative with this disease, who are gainfully employed, and who live full and productive lives. I also work in insurance.
wk in insurance & have relative with this disease.
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